Special Needs, The World We Live In

You Need to Do Better

The teacher’s aide involved STAPLED a note to the head of the child involved.

Read that again.

She stapled a piece of paper to the skin of A CHILD because he forgot a water bottle at home.

ARE YOU KIDDING ME?

As if that wasn’t enough, the punishment didn’t fit the crime, friends.

The aide was simply reprimanded. A note was placed in her file. She kept her job. She’s still working in classrooms with children. She faced no criminal charges.

Her punishment was a NOTE– a warning. Do people really need to be warned that they shouldn’t staple things to the head of other people? I thought that was really just basic common sense. Do we need warning labels for staplers now?

And the child involved?

YouHe’s afraid to return to school and rightfully so. I cannot even begin to comprehend the emotional damage this woman cause to this child. His trust was breached and she succeeded in breaking his trust of people he hasn’t even met yet.

She also broke the trust of the parents for every single educator they have to hand their baby over to. I can’t even imagine how they can stomach the idea of sending him to school anywhere ever again.

As a parent you have to be able to trust the people who’s care you leave your children in.
If you’re a parent of a special needs child you need to have that blind faith and trust even more so.

All children are vulnerable, but a child with special needs is even more vulnerable. It is not unreasonable to expect that you can send your child to school and not have them return home with having had a paper stapled to their head by their classroom aide…or their teacher…or the janitor…or anyone.

This is not okay.

Not holding this woman accountable for her actions is not okay.

The school board, the superintendent, the principal, the teacher, and the aide involved all should be ashamed of themselves.

They failed this child and in failing to protect him, they are failing to protect all the students in their charge.

They need to do better.

https://www.wkyc.com/article/news/local/boardman-teachers-assistant-staples-piece-of-paper-to-students-head/95-ef8cb028-dd45-46f9-bfc3-89b78743d01f

https://www.wfmj.com/story/43314584/boardman-teachers-aide-reprimanded-for-stapling-paper-to-students-hair

#fcvblogsquad #boardmanohio #macadematters #floodthefeed

Parenting, Special Needs

Worry vs Wonder

I am a natural worrier.

I can think, rethink, and worry out every single scenario possible. Becoming a parent only amplified that.

From the moment I found out I was pregnant, I worried. Every single twinge and ache and sensation worried me. I scoured the pregnancy books to calm myself and prepare for what was to come.

Along with that worry came wonder.

I wondered each pregnancy who my babies would be and who they would become. As I have watched them grow there has been wonder in all they do and all they are. Never far away, though, was worry. In the early days I scoured all the parenting books to calm myself and prepare for what was to come.

Fast forward to an April day where I sat in the pediatrician’s office when I poured out my worries about my son and his development. There is no parenting book to prepare you for the news that your child has a disability.

That day set off a new set of worry and wonder.

I worried that life would be unnecessarily hard.
I worried that he would never speak.
I worried that he would never be independent.
I worried that he would be lonely.
I worried he would never have a friend.
I worried about what would happen to him if something happened to my husband and me? Would someone love him the way we did?

I’d lie awake at 3am and worry about anything and everything I could imagine.

Frankly, I wondered what the hell we were going to do. What was the right course of therapy? What was the right type of educational setting? How could I juggle all the appointments and evaluations with work? How would we pay for it all?

But what replaced that worry and wonder?

Wonder of how hard my boy worked. Wonder at how far he has come. Wonder at all he knows and tells me. The worry is there, but they showed us odds and we exceeded the expectations.

I wonder sometimes how we did it all, but we made it through.

Then last March. Deja vu. Round two began with another diagnosis of my other boy. All those original worries revisited me.

But once again so did the wonder as he scaled his mountains.

I once read that faith and worry cannot exist in the same place so you have to decide where to live.

For the most part, I believe that.

When I focus to much on the worry or the wondering, I lose sight of the wonder of all that is good and all that is amazing.

The worries will always be there.

I will always wonder if I am doing enough for my boys or if I can lighten their load somehow.

But most of the time, the worry and wondering is replaced by the wonders that are my boys.

Parenting, Social Media, Special Needs

The Why Behind I

I have always been a lover of the written word. I love to read and I love to write. I spent my college years studying communication and the art of crafting it.

Post college graduation I ended up stuck in a job I hated that was the furthest thing from creative. I still read, but I had pretty much abandoned my writing aside from a rambling Facebook post here and there.

In Spring of 2018, my oldest son was diagnosed with Autism Spectrum Disorder. Around that same time my husband landed his dream job and the dream of me being able to stay home with our kids became a reality. By that October I was a full time stay at home mom.

I love being able to home with my kids. I am grateful for my husband’s hard work that allows us this opportunity. The transition from the workforce allowed me to also think about creative outlets again.

I had been toying with the idea of blogging for a while. I wrote a guest post for one of my favorite blogs and constantly formulated blog ideas in my head. But, to be honest, every single time I came close to taking the leap, I talked myself right out of it.

Enter Toledo Moms

Earlier this year Toledo Moms launched in my area and I was an absolute fan from the start! It is an amazing resource of moms in my area that covers all sorts of life stages and topics.

They put out a call for writers in February and I applied. I was hopeful and nervous about putting myself out there, but so excited to be welcomed on their team. I am proud every day to be one of the amazing Toledo Moms.

Joining up with Toledo Moms and writing with them relit my fire. It gave me the push I needed to start my own blog and put my thoughts out there.

So I did it. This little work of heart launched this summer. It is a work in progress.

That’s the how, but what’s the why?

So, I have explained how I got here, but what’s the point? What is my point? Why do I put my thoughts out there like I do?

Well, it is my passion. I love to write. I love to create. I love the craft with words. I don’t think I have the great American novel in me at this point, but I do have some pretty big thoughts and opinions.

And, Autism. I have two boys who are on the spectrum. They are at two very different places in their journeys and their autism manifests in very different ways. One very important thing I have learned on this journey with them is that even though autism is fairly prevalent, it is still very misunderstood and the resources are still very limited.

When my Jack was diagnosed I was sent out into the world with basically a wing and a prayer. I learned to research. I learned the lingo. I sought out other mothers who were navigating similar paths. I learned a lot from some amazing moms who have chosen to share their hearts and families with the world on Facebook and blogs.

I also learned to advocate like a mother. I learned very quickly what it means to be the driving force and push for evaluations, push for funding, and to seek out the right interventions and providers.

I choose to use this blog in part to be a voice for my sons and for others like them. Education is key and understanding is so important. If I can spread some awareness, sprinkle some kindness, and help someone else along the way, I will consider it a success.

I am me first.

I don’t just intend to blog about autism. It is a big part of my life now and a huge piece of our family dynamic, but it isn’t everything. My boys have autism, it doesn’t have them. So, while it is always there and always with us, it still isn’t everything.

I’ve got a pretty awesome husband and I have two amazing girls to go right along with my boys. We have some pretty awesome (mis)adventures that I like to share too. There is a lesson in everything.

While we are living in a moment in time where the world seems so heavy and sad and angry, my message is kindness and hope and the power of yet. I hope that always shines through.

Parenting, Special Needs

What I Wish Someone Had Said to Me

Dear Mama,

Today you received your little one’s diagnosis. You have answers. Sometimes answers make more questions. Sometimes answers suck. Sometimes answers are just hard to absorb.

Today is a hard day, I know- I’ve been there. Sometimes there is no preparing your heart no matter how hard you have tried.

The day I received my older son’s Autism Spectrum Disorder diagnosis I was a cornucopia of emotions.

I was sad.

My heart grieved. My tears weren’t because there was something “wrong” with my child. The tears fell because I was accepting that autism would be with us forever and autism would complicate some things for my boy. All parents want life to be as simple as possible for their children and autism added a caveat of hard to his life.

I was angry.

How many times in our lives do we say, “It isn’t fair?” That is how I felt. It didn’t feel fair that my boy would struggle.

It didn’t feel fair and I felt angry that the pediatrician didn’t take me seriously when I first suggested something wasn’t right. We lost precious months of early intervention because I wasn’t being taken seriously.

I was lost.

Okay. We had a diagnosis, but now what? They hand you a nicely typed report and send you out to navigate it yourself. There is no one size fits all therapy combination and nothing holds guarantees. It took me a moment to find my footing again.

I wish that someone would have told me that it was okay to feel my feelings. Because you know what? It is okay to feel every which way you feel in this moment!

Be mad. Be sad. Be relieved. Be stressed. Be strong. Be whatever you need to be. Give yourself the grace to feel what you need to feel.

I don’t have a crystal ball and I don’t know that it will ever be “alright” in my life so I can’t truly tell you it will be “alright” in yours.

What I can tell you, though, is there is nothing like the power of a mother.

There is nothing like the unstoppable Mama Bear who will be there and advocate and take to task whoever’ be it a doctor, insurance company, therapist, school, whoever she has to to fight for her child.

There is nothing like a Mama who loves beyond measure and believes in her child.

No matter where this path takes you, know that you’re not alone.

And know that you and your sweet child will be okay- whatever your “okay” looks like.

One day you’ll look back and these feelings you have now won’t be so raw. You will feel stronger and more seasoned. You will have a new understanding of yourself, your child, and the world around you.

You will get to the other side.

I’ll be cheering you on along the way.

Love,

Me

Parenting, Social Media, Special Needs

The Power of a Word

Words. They matter.

I spent the better part of my post-high school academic career studying the written and spoken word and how those words matter.

I also have three children who struggled to find their voices. They have worked through intensive speech therapy to be able to find and use words.

The power of a word is not lost on me.

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I teach my kids to think before they speak. Is it kind? Is it truthful? Is it necessary? If they can’t answer all of those questions with a yes then maybe they should think about saying whatever it is before they do.

This is why it bothers me so much when people say, “They are only words.”

Words have power.

The way we talk to people isn’t a reflection of them as much as it is a reflection of ourselves. The way we talk to and about our children becomes their inner voice.

I’ve had this on my mind a lot for a few months now. It seems like in our current culture it has become a social norm to be a “keyboard warrior” online and to excuse really, really awful behavior because “they are only words.”

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I really got to thinking about this last night after what turned into a heated social media discussion, if we can call it that, with someone I respected. I generally try not to engage and avoid hot button issues- especially when I know the other parties aren’t particularly receptive to different points of view. I know it was 100% it was my fault for kicking the proverbial bees nest, but it was most certainly not a respectful discussion on either side. I am not too proud to admit it wasn’t a good look for either of us.

Follow me as I dig just a little deeper here…

It isn’t just the written word that matters. It isn’t just what we see each other write online that matters. It is true that social media has empowered a lot of us to say things, really unkind things that we wouldn’t necessarily say to someone’s face and we should think before we type, we also need to think again before we speak.

The Power of a Word

There have been moments in my life where words have been really influential on me: The words contained in the acceptance letter to my dream college. My husband asking me to marry him. My Grandmother’s marriage advice after telling her I was engaged. My Dad’s wedding toast to my husband and me. The first time my children told me they loved me. Any time someone told me “You can’t” or that I would fail.

I also can think of moments where words didn’t just have an impact on me, but also on my view of the world or someone in it.

Once, after the birth of a new baby, some relatives came to visit and meet him. One of them had been wanting a baby of her own and working their way through the options. She mentioned how she was slightly discouraged because another family at their church had received yet another foster placement while she was still longing for her first. Her husband responded with a remark about how that child had autism and that family was able to get another child because they were willing to “take whatever garbage is thrown at them.”

Now, it was a passing conversation and comment and the people involved probably don’t remember it, but I do. Six months later as my oldest son received an Autism diagnosis, it resurfaced in my mind. It took up space and it lives there. Every interaction this person has with my child, his words come to mind.

A few summers back a new family moved into our neighborhood. My girls were thrilled to have more kids their age to play with. It was great at first. They played frequently and I was all for it until I started to hear the way these children were speaking. They were being mean to my girls- cruel, really, and thinking they were funny.

Their words weren’t welcome and it was tough to navigate, but my girls learned they needed to speak up for themselves, but also to believe in themselves and they were worthy and capable of great things.

Around the time of my first son’s ASD diagnosis I reached out to the few mamas I knew at that point in time with children on the spectrum. I was lost and looking for guidance. Out of them, most were encouraging, offered support, and gave some advice. One, however, told me to get over it and not make it about myself. She had nothing to offer and I would figure it out just as she had.

That stung. It put up a wall in our friendship. I often think about her words when I am sharing my perspective on our life with the spectrum. I hope that should another mama ever come to me looking for a lifeline as I had been that I remember her counsel and offer better.

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These are only a few examples of the power of words, but they were impactful enough to bear mention. They were moments said in passing that have an echo that remains.

Lately, this world doesn’t seem built for kindness. To have a soft heart or to admit your hurt almost instantly is met with more insult or a suggestion to “toughen up.” I don’t agree with that, but I am also not saying that we should all walk around in bubble wrap with fragile egos and tiptoe around people. But maybe, speak less and think more before you do.

Is it kind? Is it truthful? Is it necessary? If our answer is no to any of these questions, then maybe we need to rethink our words.

The old childhood rhyme “Sticks and stones may break my bones, but words will never hurt me,” comes to mind. Maybe words can’t break a bone or cause visible damage, but words do in fact matter. Words can break and words can damage.

Words have power.

It is up to you whether or not you choose to use your words and your voice for good.

Choose your words wisely.

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